Spinal muscular atrophy (SMA) is a rare, progressive, inherited monogenic disease characterised by lower motor neurone degeneration, muscle weakness, and breathing and swallowing difficulties.

SMA represents a continuum or spectrum of disease and is typically classified into four types (types 1 to 4) that can range in severity and age of onset. In SMA, the most severe and common form, most lower motor neuron degeneration occurs in the first few months of life causing rapid and irreversible damage – SMA is the focus of our iHV Good Practice Points resource.

iHV Resources

πŸ“ƒ Good Practice Points and Parent Tips

Developed in collaboration with topic experts, health visitors, and other professionals, our resources draw on the latest available evidence at the time of publication. Each resource is produced through a robust quality assurance process and peer reviewed to ensure accuracy, relevance, and strong alignment with health visiting practice. 

Img_Spinal muscular atrophy Type 1: Spotting the signs and symptoms

Spinal muscular atrophy Type 1: Spotting the signs and symptoms

Parent Tip

πŸ”Ž iHV LEARN Programmes (free to access for iHV members):

We offer a range of e-learning and toolkits to support your practice via our learning platform iHV LEARN. Additional resources are available within courses for those who have completed the corresponding training programme.

This Toolkit has been designed by leading experts to equip health visiting practitioners in the   promotion and assessment of motor development with a range of short videos and resources to support the early identification of atypical motor development/β€˜red flags’.  

Img_iHV Motor Development Toolkit

iHV Motor Development Toolkit

πŸ“– iHV Training Opportunities

Our wide range of award-winning and popular training programmes are designed for practitioners across all levels of health visiting and the wider multidisciplinary team.

Img_Motor Development Programme

Motor Development Programme

🏷️ Cost: From £240

πŸ•’ Duration: 5 Hours

πŸ‘₯ Suitable for: Health Visitors and Skill Mix

Associated iHV Resources

Img_Motor Development

Motor Development

Img_SEND Specific Support

SEND Specific Support